Brianna’s Blog | A Journey Through POTS, EDS, and More

When I thought about the idea of starting a blog, I really didn’t know what I was going to write. I mean, I had ideas, sure, but getting them onto “paper” is always the hard part. I guess, for starters, I’ll tell you how I got into this mess of health issues.

For the most part, I lived a completely normal life for the first 25+ years. It wasn’t until I came down with COVID in 2022 that everything seemed to spiral out of control.

I first developed POTS. I was fainting nearly 10-15 times a day at my worst. (Thankfully, this is much better controlled now, and I’ll talk more about it in another blog post.) Then, my seizures began. It’s taken 4 years and numerous doctors and tests, but we were JUST able to confirm that they are non-epileptic. Shortly after the seizures began, I had EDS rear its ugly head. EDS was and still is debilitating for me. It left me needing crutches and sometimes a wheelchair to get around. Finally, my MCAS flares began happening, and at first, we couldn’t control them. It sent me to the hospital for a multi-day stay.

With all of these chronic conditions, I’ve learned that perseverance is so crucial to getting the answers and help you need. You can’t give up looking for those answers. Especially with my seizures, it took 4 years to get a real diagnosis, but we finally just got one a couple weeks ago.

So that’s how all of this started. It could’ve been from COVID, or it could’ve been just weird timing. Whatever the case though, it’s been 4 years of ups and downs, trial and error, and just trying to figure out how to live with these conditions.